3 responses to “The Electric Mayhem: Gunpowder”

  1. Jay Tomio

    I agree, Pilo Family Circus is well worth the read.

  2. Marilyn Hallowell

    I do have narcolepsy and I have “walked a mile” in Mark’s shoes. I absolutely disagree with your assessment of the book as not adequately relating the experience of narcolepsy. Mark G. is not on medication and the severity of symptoms are on the extreme end of the spectrum, but in relating Marks’ thoughts and experiences the author does captures many esoteric nuances of the experience of narcolepsy, As narcolepsy is an “invisable” disease, most people don’t really understand how pervasive the symptoms are-how the symptoms alter your perception of events, time and may at times blur the boundaries between what is experienced when awake, and what was experienced in sleep. An example I really appreciated was when the author described the way the half sleeps, and naps and REM symptoms can make time estimation challenging. He describes it as each time Mark wakes, it is like a new day, so things that may have occurred recently are remembered as if a lot more time (sleep cycles) have passed. The character deals with daily, even hourly frustrations due to the general cognitive fog, not being able to trust his own memory and even not being able to drive. Many of these situtions are presented as humorous, but you are always laughing with Mark not at him. After 8 years with the disease, he would have had to adapt somehow and Mark adapted by accepting most of it stride. That doesn’t mean that it doesn’t get to him sometimes like when Mark talks about feeling that his disease isn’t taken seriously and that he is “the punch line in a joke”. Mark also describes the loses experienced by a narcoleptic. I tend to be a look-on-the-bright side and present a positive face person. But it was deeply touching to see the loses listed in print-acknowledged. I paused in my reading and thought about all the people who would read the book and perhaps, along with reading an interesting and fun little detective novel, also gain a little deeper understanding of the experience of narcolepsy.
    P.S. I found the characters of Mark and his mother, Ellen, very likeable-even inspiring in their own just play the hand that was dealt way.

  3. Marilyn Hallowell

    And the stuff about speech impediment… Mark’s slow speech was never discribed as an impediment that resulted from the accident. The author just started that he talked slow. The fatigue felt by a narcoleptic is discribed as what it would feel if someone were to be kept awake for 48 hours straight. That tired anyone would talk a bit slow. When Mark was being snappy with the dialogue in stressful situations, that was when he was dreaming.

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